The road less travelled,with guides who know the way
Every person living with a rare condition matters. Good communications inform their journey. Great communications change it.
That can mean an earlier diagnosis, the right treatment started sooner, or a family that finally feels understood. At Camino, we have more than 100 combined years of experience with specialist rare disease biotechs and the rare teams of global pharma. As guides, we never lose sight of our destination: getting your medicine to every patient who could benefit. And making sure we have an adventure along the way.
The Camino difference for rare disease communications
01
Small teams, big ambitions
Rare pharma teams often wear a lot of hats. Good thing we look great in hats! We work as one team with yours, using AI tools we’ve built ourselves so you can do more, and make it count.
02
Finding the human story in small data
Small trials and surrogate endpoints are hard to explain. Our scientific brains and creative minds make the evidence easy to follow, and connect it to the human experience.
03
A conversation for every audience
A GP might see one case in a career; a specialist might see one a week. We pitch every message to what each audience already knows, and meet them where they are.
04
Ready when the science moves
The science in rare disease moves fast and plans change. As an independent agency, we can change direction quickly without losing momentum (or our sense of humour).
As featured in The Guardian
Why rare disease conversations need the right blend of AI and people.
"AI is already reshaping rare disease diagnosis. What if it could do the same for how we communicate with patients and healthcare professionals?"
Read the full article here →‘Appropriate intelligence’ for rare
Rare disease runs on empathy and nuance. We use AI where it helps, and people where it matters most.
Picture this:
- Patient materials that adapt to reading age, language and where someone is on their journey
- Tools that help clinicians see how differently one condition can show up from patient to patient
- Accurate, trusted answers for families out of hours, when questions can’t wait
Our poster at World Orphan Drug Congress 2026
Who’s asking? Persona framing changes the evidence AI assistants cite on sickle cell disease
Same questions, different evidence: journals made up 3% of citations for lay patients and 30% for specialists.
View the poster →We know rare
We’ve supported rare disease programmes in:
- Neurodevelopmental & epilepsy
- Neuromuscular
- Lysosomal storage disorders
- Metabolic
- Endocrine & growth
- Bone
- Haematology
- Liver & cholestatic
- Renal
- Ophthalmology
- Dermatology
- Respiratory & cardiovascular
- Diagnosis, management & guidelines
How we help
Whatever the condition, we can support with strategy, medical education, patient and caregiver communications, resources, meetings, digital and AI, disease awareness… and the occasional detour off the map.
Explore related field manuals
Flexibility on paper, confidence in practice
Rare disease drug developers don’t need more flexibility on paper. They need confidence in practice.
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The Goldilocks approach to omnichannel rare disease communications
Balancing ambition and practicality to make your strategy more than a fairytale.
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AI-powered patient comms
AI transforms patient comms by simplifying science, speeding up delivery, and personalising content – especially in rare disease contexts.
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